I am so angry.
I knew going in that this test wouldn't show what the problem actually is. We feed Jack dinner at 6 or 6:30, and his symptoms show up at 1 or 2 in the morning. So, exactly how will a test that takes pictures of his esophagus while he's drinking barium show what happens 7 hours later? It won't, but I'm a good sport so I agreed.
The radiologist said that it showed "a little" reflux. I asked her if we could wait a while and take more pictures, because the problem happens so long after he eats, but she said that the barium wouldn't show up more than a few minutes later.
So the nurse from our doctor's office called today and said, "You should quit the Zantac, and continue to give low-dose milk of magnesia for symptoms, but the doctor thinks this is probably behavioral and that he'll outgrow it with age and gentle sleep training..."
And my head flew off.
"My baby is NOT spoiled!" I said. "The doctor has known me for 8 years, and he knows both of my daughters, and NONE of my kids are spoiled. I am a good mother, and I can tell the difference between a baby who doesn't want to go to sleep and a baby who is in pain. My baby is in pain, and this has been going on for over a year, and if it's not reflux then why does positioning help? Why does milk of magnesia help? If it's not reflux then it's SOMETHING and it's dismissive and insulting to say it's behavioral."
Of course, in the middle of all this my phone dropped, so the nurse thought I hung up on her. Thanks, AT&T!
God, it's so FRUSTRATING to go to the doctor and say, "it's getting worse, help my son!" and have them say, "it's all fixed, your baby just doesn't want to sleep." I KNOW that he wants to sleep. He lays down and tries, but it hurts him. I can tell that he's trying. The night before the test I ended up sitting up with him on the couch for an hour, after he'd been awake for an hour already, until he fell asleep, because laying down hurt him.
So we have an appointment (and they insisted that I bring BJ with me, apparently he has a reputation for being the calm, rational parent) on Monday morning.
I plan to spend the rest of the time between now and then trying to figure out what could look like reflux and act like reflux, but be something else - something that happens 6 or 7 hours after eating, when his stomach is empty. Something that would cause him to arch his back and cough, cry, and try to crawl away from the pain.